Welcome.This site is dedicated to those who share the rare and challenging autoimmune condition called EGPA, which stands for "Eosinophilic Granulomatosis with Polyangiitis." Churg-Strauss Syndrome (CSS) is the old name.
This is a UK site and although it is as inclusive as possible, detail may differ in your own country but wherever you are from, you are welcome and wished the very best.
You can cut all the flowers but you cannot keep Spring from coming.Pablo Neruda
Is this really happening to me?
Recovery is obviously hugely important involving close collaboration between you, your medical team and those around you.
There are many challenges but there is absolutely no reason why life after EGPA should not be lived to the full.
Once you have got to grips with your condition and you feel ready to learn more, have a look at the learn section to discover more.
You will find a mixture of easy reading and highly technical material including a glossary of medical terms that often come up in the context of EGPA.
If you are close to a newly diagnosed sufferer then stop off here.
Jo Marchant is an award-winning science journalist and author. She has worked as an editor at New Scientist and at Nature and writes on topics from the future of genetic engineering to underwater archaeology.Her book "Cure: A Journey into the Science of Mind over Body" is an objective study of the potential of the mind to heal. Review it in Good Reads.
Scientists are making some exciting advances in understanding mind-body connections in autoimmune conditions from psoriasis to multiple sclerosis. Stress undoubtedly plays a role, as do learned responses to psychological cues. These links are often dismissed or ignored by doctors but the hope is that in future, harnessing these effects to reduce drug doses, or perhaps even slow disease progression, will become a routine part of medicine.Contact. →
email : firstname.lastname@example.org
Use these quick links to navigate to some of the most popular pages.
Mar 4th : Resources section updated. Go to Resources section..
Feb 25th : Message from Jo Marchant, science journalist and author.
Jan 6th : A Prologue has been added to 'Learn'. Read the Prologue.
Nov 13th: Winter makeover.
Oct 2nd : A library section has been added to 'Learn'. Visit the Library.
Sept 17th : Frances shows how its possible to get back to the things you love.
Visit the Can DO page.
Sept 13th : A summary on the use of ginger and a link to University of Maryland Medical Center article added to FAQs.
Sept 4th : Logan, a soccer fanatic gives his own form of Can DO encouragement.
Visit the Can DO page.
A note has also been added to the welcome section above on UK terminology.
Aug 27th : VF have published a very helpful article on vaccination Visit the FAQ page.
Aug 20th : Many of you will have followed Paul's Martial Arts experiences and his desire to develop and encourage others. He is now featured on the Can DO page. Visit the Can DO page.
Jul 5th : A new section has been launched on EGPA.info, called 'learn'. The first subject is Neuropathy. Visit the Learn page.
May 2nd : FAQs have been updated to include a question about superfoods also you will find Mike's story on the Can DO page. Visit the Can DO page.
Apr 26th : Updates have been made to the resources section. there is an FAQ on tattoos and numerous additions to the glossary and education pages.Visit the resources page.
Apr 15th : We reported on Avery's Walk-a-thon last month - he is still going and you are still giving. Don't stop there! He wants to achieve so much and is making an unbelieveable effort. Read more and please donate. Avery has also agreed to be featured on the Can DO page where his story can be seen. Visit the Can DO page.
Apr 6th : Estelle tells her story. We hope this will encourage you to tell your story too! Visit the Can DO page.
Apr 1st : There is a brand new page in EGPA.info which looks at how fellow sufferers find ways to challenge themselves and give life a new direction. Its entitled 'Can DO' and can be found under the 'Live' menu. Suzanne is the first contibutor. We hope this will inspire you to tell us about your story. Visit the Can DO page.
Mar 25th : Jessica, an EGPA sufferer, has just launched a Facebook interest group to help victims of chronic-illness & abuse. She will offer tips and coping strategies. Visit Jessicas' page.
Mar 15th : Making a difference : Avery is only 18 years old but has EGPA. His experience has made him determined to help others and raise as much he can, so he is doing a Walk-a-thon. Well done Avery. Read more and please donate.
Mar 9th : Toni Street NZ Celeb: 'Last year was the hardest I've ever had' Womans weekly article.