Welcome.

This site is dedicated to those who share the rare and challenging autoimmune condition called EGPA, which stands for "Eosinophilic Granulomatosis with Polyangiitis." Churg-Strauss Syndrome (CSS) is the old name.

This is a UK site and although it is as inclusive as possible, detail may differ in your own country but wherever you are from, you are welcome and wished the very best.

You can cut all the flowers but you cannot keep Spring from coming. Pablo Neruda

Walk through.

Crash.

Is this really happening to me?

Recover.

Recovery is obviously hugely important involving close collaboration between you, your medical team and those around you.

Live.

There are many challenges but there is absolutely no reason why life after EGPA should not be lived to the full.

Learn.

Once you have got to grips with your condition and you feel ready to learn more, have a look at the learn section to discover more.

Resources.

You will find a mixture of easy reading and highly technical material including a glossary of medical terms that often come up in the context of EGPA.

Friends and family.

If you are close to a newly diagnosed sufferer then stop off here.

Message from Jo Marchant.


About Jo. →

Jo Marchant is an award-winning science journalist and author. She has worked as an editor at New Scientist and at Nature and writes on topics from the future of genetic engineering to underwater archaeology.

Her book "Cure: A Journey into the Science of Mind over Body" is an objective study of the potential of the mind to heal. Review it in Good Reads.
Jo's Message to EGPA sufferers. →

Scientists are making some exciting advances in understanding mind-body connections in autoimmune conditions from psoriasis to multiple sclerosis. Stress undoubtedly plays a role, as do learned responses to psychological cues. These links are often dismissed or ignored by doctors but the hope is that in future, harnessing these effects to reduce drug doses, or perhaps even slow disease progression, will become a routine part of medicine.

Contact. →

email : admin@egpa.info


Quick links

Use these quick links to navigate to some of the most popular pages.

Updates.

Jun 4th : Learning about sleep added. Read about sleep.

May 21st : Jeannie sends a message of hope and determintation. Visit the Can DO page.

Mar 4th : Resources section updated. Go to Resources section..

Previous updates.