Our main aim.

This site aims to put some perspective into the position in which you find yourself and is maintained by fellow sufferers. Its purpose is to help you to understand and come to terms with EGPA rather than giving specific or individual medical advice which is the responsibility of your health professional. It will hopefully encourage you to study further and help bring together the research and the real life experience.

Any society that needs disclaimers has too many lawyers. Erik Pepke

Our hope for you.

Site Values

  • To inform about EGPA, with particular emphasis on the newly diagnosed.
  • To provide information on what to expect and experiences of how others live with the disease.
  • To point to resources for further reading.
  • Although not a charity itself, to encourage support for other established EGPA charities.
  • To provide all of this in the context of a clear, uncluttered site which is free to use, has no sponsors, requires no registration and collects no personal data.


We hope you are able to find what you need, if not feel free to contact us at admin@egpa.info with any thoughts or suggestions. We are sorry but we cannot enter into any correspondence about your specific case. There are links provided to social media sites, where discussion is positively encouraged. We will meet you there!


Material on this website (The Data), provided by EGPA.info is for general information purposes only. Given the content, comments on medical matters are unavoidable and since the data is managed by sufferers, rather than medical practitioners, it will not be highly technical.

We care about accuracy and make our best endeavours to keep the data current and correct, however we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability of the data. Any reliance you place on the data is therefore strictly at your own risk.

There are other sites, run by medical professionals, where greater objective and scientific detail is provided. They are beyond the scope of this site, which aims to simplify, summarise and contextualise, without too much jargon. Remember that your doctor will know far more about you and your specific needs than other sufferers and as valuable as that experience is it should never replace or delay what has been prescribed by your medical professional.

In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, health issues, or any loss or damage whatsoever in connection with the use of this website.

External Links

External Links are provided where we think this might help in your own further study. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them. We receive no financial inducements to provide specific links. Where these sites offer products, services or other information we provide no warranty or guarantee. You must come to your own independent conclusions.