A snow cave sounds a tempting place to deal with a flare! We know the word 'flare' is in common usage but its meaning can be a little broad. Some say they are having a flare when they are feeling stressed and simply need rest. Others, who are perhaps less willing to vocalise their symptoms might be having a relapse. Its important to know which is happening!
It is always best to err on the side of caution and consult with your medical team as soon as there is recognisable change in your symptoms.
It could be an unexplained difficulty in breathing, sudden loss of smell, unusual fatigue, or other EGPA symptoms.
Given appropriate medical attention, the impact of the relapse, if that is what it is, can be minimised.
Remission is a temporary or permanent state where disease activity is significantly reduced, though relapses are still possible. During this period the opportunity is normally taken to introduce steroid sparing drugs such as Mycophenolate.
Remission can mean that there is a general feeling of wellbeing but when there is organ damage, nerve damage or other ongoing issues, it could be on the borderline of 'acceptable health'. Its very individual.
Remission can be said to occur irrespective of whether immunosuppressive medication is still being used or not.
A relapse is simply departure from a state of remission, where disease activity increases, though relapses are thankfully normally less severe than the original disease presentation.
The reduced severity of the relapse could be due to background immunosuppressants already in the system or the early recognition of changed symptoms but at present it is not accurately known what causes a relapse.
Up to 80% of EGPA sufferers will experience a relapse.
Relapses may bring the same or different symptoms as the original presentation<< Prev    Next >>