Learn.

EGPA is a disease with wide ranging symptoms. At the same time the medical world is a complex place so the object of this section is to simplify as much as possible so that you can start making some sense of your condition.

Learn What?

Library Prologue Neuropathy Sleep
Everything should be made as simple as possible, but not simpler. Albert Einstein

Simplicity.

The medical landscape is overgrown with words longer than a flight of stairs and you know how daunting that can be!

Its not fair that we not only have to cope with a disease that has such variable outcome (prognosis), not to mention the ADRs (Adverse Drug Reactions), but we also have to make sense of the often unintelligible explanations.

Of course, your doctor may have difficulty explaining your condition and is most likely in this circumstance to use even longer words!

The aim of this part of EGPA.info is help the learning process by simplifying various subjects with links to more in-depth material for those who need it.

Jargon - a doctors view.

"Sometimes, interpreting the doctor's medical jargon can feel like trying to understand the lyrics of a rap song. On one occasion, my wife asked me to accompany her on a visit to the doctor to help interpret her test results.

As my colleague rattled off a detailed explanation of "pH, calcium metabolism, oxalate ratios and the effect of citrate," I realized that even I didn't have a clue what he was talking about. Unfortunately, like most patients and families, I didn't want to show my ignorance, so I sat quietly and nodded my head in affirmation. As we walked to our cars, I was unable to explain the results to my wife - I didn't have a clue. I was the poster boy for the fact that inadequate health literacy is not restricted to the poorly educated."

Get Your Doctor to Stop Using Medical Jargon
Richard C. Senelick, M.D.Neurologist, author, blogger and international speaker

Can we be experts?

We all have different learning abilites and background but it will help significantly if we can at least understand some of the basics, recognise new symptoms and explain our issues clearly . Unfortunately EGPA is a disease that can potentially affect most organs, so the scope is broad.

Most doctors have spent so many years using 'jargon' that they don't realise words that they see as common english are in fact unintelligibe to many.

In a study Medical communication: do our patients understand? it was found that a surprising percentage of people did not understand simple medical terms. For example 78% did not know that a fractured bone meant the same as broken bone!

We hope therefore to increase your understanding to a level which will enable effective communication and therefore better treatment.