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From time to time contact is made with individuals who have a deep interest in issues surrounding disability, rare diseases and other related areas. Some, when contacted are gracious enough to find the time to send a message to EGPA sufferers.

Their messages are recorded below but needless to say, do not constitute an endorsement of this web site.


Jo Marchant .

My web page.

My Message.

"Scientists are making some exciting advances in understanding mind-body connections in autoimmune conditions from psoriasis to multiple sclerosis. Stress undoubtedly plays a role, as do learned responses to psychological cues. These links are often dismissed or ignored by doctors but the hope is that in future, harnessing these effects to reduce drug doses, or perhaps even slow disease progression, will become a routine part of medicine."

About Jo.

Jo is a science journalist and author. She has a PhD in genetics and medical microbiology from St Bartholomew's Hospital Medical College in London, and an MSc in Science Communication from Imperial College London.

She has worked as an editor at New Scientist and Nature and has written on topics from the future of genetic engineering to underwater archaeology. Her articles have appeared in many publications including The New York Times, The Guardian and Smithsonian magazine.


Camille Pagán .

My web page.

My Message.

"I don't know how it feels to have EGPA, but as a health writer and editor who has spoken with hundreds of people coping with difficult diagnoses, I've been told that laughter and hope make the day-to-day more bearable. I hope that my book will bring you a little levity and light."

She was thrilled that her book 'Life and Other Near-Death Experiences' has been listed in our Good Reads and wishes us all the best.

About Camille.

Camille is an Author, journalist and editor specializing in health. Her work has appeared in Fast Company, Forbes, Men's Health, The Oprah Magazine, Parade, Time, WebMD, and many others. She has also been on staff at several national publications and websites including health editor at Real Simple magazine. She is a graduate of the University of Michigan, where she studied English and Native American literature and worked as a research assistant in the department of cardiology at the U of M health system.


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