If you have recently been diagnosed, its quite likely that you have spent months and maybe years feeling unwell with asthma, nasal problems or one or more of the basket of ailments that EGPA dishes up before its ready for the final course! You probably already feel somewhat persecuted from these and in a sense, to finally put a name to your condition can be a welcome relief.
EGPA can strike quickly and hard, in its third and final vasculitic phase so it's understandable if we get emotionally distracted. We all repond differently from an emotional standpoint.
We all need some 'why me?' time but at some point we have to work a way through it. It's a step by step building process.
A sudden illness like EGPA can send emotions into overdrive. This is normal and fuelled by fear, loss of control and the difficulties that EGPA itself presents!
Recovery is likely to be slow and you will need to be both positive and realistic about your goals.
Talking things through with family and friends is helpful for most people. Support groups will help you to feel that you are on your own.
Don't be afraid to show your emotions, especially in the early days. Denial, anger, tears and feeling low are all part of a process towards a healthy acceptance of what has happened.
Every day try to find somthing that you can be grateful for, this will help balance the negatives, at least to some extent.
The probability of getting EGPA is very low. Take the UK as an example, the population is 64 million, give or take a few, so there will be about 150 newly diagnosed cases each year. You could meet more people taking a trip to the supermarket or have hours (years) of fun trying to roll seven consecutive sixes with a dice. However you express the numbers, you are very unlucky.
There are many, more common ailments, that strike you down where you stand, not to mention all the other natural disasters that life has to offer. At the other extreme, there are some very lucky people who never get ill, never have any personal problems and die in their sleep at a ripe old age. Good luck to them! Most of us though have to deal with whatever life throws in our direction, whether it's EGPA or a very long list of other things.
Unlike calamities that we bring on ourselves, through our own actions. EGPA like many other rare diseases is a random occurance which has to be faced. There is no choice. Our approach in coming to terms with this will be an important part of the recovery process.<< Prev    Next >>